VP Race against als


  • Valéry Perrier
  • ALS
  • Our Actions
  • KU Leuven
  • Support the fund
  • Contact

Our Actions





ALS came as a shock to us: we had heard about the Ice Bucket Challenge and its purpose but that was it. Of course, we looked for information frantically and quickly understood that there was not much to be done, apart from making sure that Valéry was as well cared for as possible with that kind of disease. This quickly meant weekly appointments with speech therapists and physiotherapists. A few months later we also had to add daily nurse visits… When Valéry passed away in 2016, we knew we had to do something. We spent quite some time thinking about how to address the issue and we came to the conclusion we wanted to boost research. We came in contact with the KU Leuven in January 2018: we felt they were the right partners for us. Professor Philip Van Damme heads the Laboratory of Neurobiology and through our various actions we want to collect money to help their research.



VP RACE AGAINST ALS



So far we have organized go kart races, wines sales and a silent auction.



On June 21st we have officially joined the Belgian ALS Liga in order to join forces and reach more people with our goal to raise money for KU Leuven’s ALS research.



To mark the Ice Bucket Challenge's 10th anniversary we have launched the challenge again with some very enthusiastic colleagues and students from the Jean Monnet Lycée Français, then we challenged ourselves with members from the ALS Liga, researchers from the KU Leuven and the Professors Van Damme and Van den Bosch on June 21st.



If you wish to donate against ALS
Si vous souhaitez faire un don au profit de la lutte contre la SLA



you can make a donation
vous pouvez faire un don sur le compte de la Ligue SLA
https://doneer.als.be/fr





La Ligue SLA est notre partenaire au sein duquel est organisé le Fonds Valéry Perrier Race against ALS. Votre don profite au fonds de recherche A Cure for ALS de la Ligue SLA. Lors de la communication, veuillez mentionner : Fonds Valéry Perrier Race against ALS. Pour les dons de 40 euros ou plus, la Ligue SLA vous remettra une attestation fiscale. Nous vous remercions de tout cœur !

The ALS Liga is our partner collecting all the funds collected by the Valéry Perrier Race against ALS Fund. Your donation will go straight to the A Cure for ALS Research Fund of the KU Leuven. In the reference please mention : Valéry Perrier Race against ALS. For all donations above 40 euros you will receive a fiscal deduction letter.

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"Go Kart Race" 4th Edition - september 2023



On September 30th, 2023, 40 competitors managed to raise 6000 euros for more research on ALS at KU Leuven ! We are super happy with this result and will definitely think about the 5th Edition !



Your Title Here





Silent auction ceramics - 2023





4L Trophy



Our loyal sponsors have allowed us to take part in the 2023 4L Trophy. Mathilde and Solène have « raced »from Biarritz to Marrakech to donate school supplies to Morrocan children in need and also raised awareness for ALS Research. We are proud of them raising 5200€!



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ALS Awareness Day : June 21st 2023



In order to mark the International ALS Awareness Day on June 21st, the Belgian ALS Liga organiser a walk from their new Leuven city center office to the KU Leuven ALS Research lab. Over 50 people, patients, carers and ALS Liga members joined this memorable event. We were welcomed by a very enthusiastic team of researchers who gave us a tour around the lab and a very interesting update on the latest developments. They need our constant support to continue their work!



ALS AWARENESS DAY 2023



ALS awareness day 2023



ALS awareness day 2023



ALS awareness day 2023



ALS awareness day 2023



"Go Kart Race" 3rd Edition - October 2021





"GO KART RACE" 2nd Edition



Corbière Wine



1st Edition "Go Kart Race"



Inauguration